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Focused On Rare Education


RarusMed and RarusGalaxy represent a comprehensive rare diseases and disorders education ecosystem for healthcare providers, patients, and families.

RarusMed features continuing education through Virtual Clinics focusing on specialized knowledge and skills for interdisciplinary healthcare teams.

RarusGalaxy features education through Games and Mini-Documentaries that help people with rare diseases and disorders, and their families, effectively understand and manage their healthcare journeys.

Together, we navigate rare frontiers and illuminate extraordinary lives.

Shared Knowledge and Compassion



For people with rare diseases and disorders and their healthcare providers, it's the synergy of shared knowledge and compassion that paves the way to a brighter, more informed, and connected future. 

We strive to create an environment that resonates with the lived experiences of people with rare diseases and disorders, imbuing all education with holistic, interdisciplinary perspectives.
“Holistic education can lead to optimal care, and ultimately, better outcomes for people with rare diseases and disorders.”

— Isabelle Vacher, Founder/Nurse/Educator/Mother of Daughters with Rare Disorders
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Holistic Education Ecosystem

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"Navigating rare frontiers" for Healthcare Providers

Virtual Clinics

Experience the dynamics of a rare diseases and disorders healthcare team with our RarusMed Virtual Clinics, blending interdisciplinary expertise and patient insights to enrich healthcare provider continuing education and emphasize patient-centered care.

Some of our rare diseases and disorders therapeutic areas include:

Gastroenterology

-Eosinophilic GI Disorders
-Celiac Disease
-Pediatric Inflammatory Bowel Disease
-Progressive Familial Intrahepatic Cholestasis
-Alagille Syndrome

Genetics/Metabolism

-Von Willebrand Disease
-Hunter Syndrome
-Gaucher Disease
-PAI-1 4g/4g Polymorphism
-Hemophilia

Nephrology

-IgA Nephropathy (Berger’s Disease)
-Polycystic Kidney Disease
-Alport Syndrome
-Fabry Disease
-Atypical Hemolytic Uremic Syndrome

Neurology

-Rhett Syndrome
-
Idiopathic Hypersomnia 
-Narcolepsy
-Neurofibromatosis Type 1
-Growth Hormone Deficiency

Discover more specialties within our comprehensive learning portal.

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"Illuminating extraordinary lives" for People with Rare Dieseases and Disorders





Step into RarusGalaxy for a unique adventure! Interactive educational games make learning fun and provide a sense of community. Spotlight's offer a deep dive into the lived experiences of those with rare diseases and disorders through captivating mini-documentaries, enriching understanding and hope with real-world perspectives.

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Don’t miss out on the latest in rare disease education! Sign up to receive notifications about our upcoming activities, including virtual clinics, educational series, and innovative programs designed for healthcare providers, patients, and families.

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