navigating rare frontiers, illuminating extraordinary lives

Focused On Rare Education

RarusMed represents a comprehensive rare diseases and disorders education ecosystem for healthcare providers, patients, and families. Together, we navigate rare frontiers and illuminate extraordinary lives.

‍RarusCE features continuing education through Virtual Clinics focusing on specialized knowledge and skills for interdisciplinary healthcare teams.

RarusGalaxy features Games and Mini-Documentaries to help people with rare diseases and their families manage their healthcare journeys.

About us +

Shared Knowledge and Compassion

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For people with rare diseases and disorders and their healthcare providers, it's the synergy of shared knowledge and compassion that paves the way to a brighter, more informed, and connected future.

We strive to create an environment that resonates with the lived experiences of people with rare diseases and disorders, imbuing all education with holistic, interdisciplinary perspectives.

“Holistic education can lead to optimal care, and ultimately, better outcomes for people with rare diseases and disorders.”

— Isabelle Vacher, Founder/Nurse/Educator/Mother of Daughters with Rare Disorders

More Details +

"Navigating rare frontiers" for Healthcare Providers

Virtual Clinics

Experience the dynamics of a rare diseases and disorders healthcare team with our RarusMed Virtual Clinics, blending interdisciplinary expertise and patient insights to enrich healthcare provider continuing education and emphasize patient-centered care.
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Some of our rare diseases and disorders therapeutic areas include:

Gastroenterology

-Eosinophilic GI Disorders
-Celiac Disease
-Pediatric Inflammatory Bowel Disease
-Progressive Familial Intrahepatic Cholestasis
-Alagille Syndrome

Genetics/Metabolism

-Von Willebrand Disease
-Hunter Syndrome
-Gaucher Disease
-PAI-1 4g/4g Polymorphism
-Hemophilia

Nephrology

-IgA Nephropathy (Berger’s Disease)
-Polycystic Kidney Disease
-Alport Syndrome
-Fabry Disease
-Atypical Hemolytic Uremic Syndrome

Neurology

-Rhett Syndrome
-Idiopathic Hypersomnia
-Narcolepsy
-Neurofibromatosis Type 1
-Growth Hormone Deficiency

Discover more specialties within our comprehensive learning portal.

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"Illuminating extraordinary lives" for People with Rare Dieseases and Disorders

Step into RarusGalaxy for a unique adventure! Interactive educational games make learning fun and provide a sense of community. Spotlight's offer a deep dive into the lived experiences of those with rare diseases and disorders through captivating mini-documentaries, enriching understanding and hope with real-world perspectives.