rare disease & disorder focused; technology enabled

Driven by Purpose
‍

Rarus [Latin]; Uncommon, scarce, rare, extraordinary, remarkable.

RarusMed is a newly formed health education company backed by a highly experienced team and encompassing a holistic rare diseases and disorders education ecosystem for healthcare providers, patients, families and caregivers.

‍RarusMed focuses on rare diseases and disorders continuing education for the interdisciplinary healthcare team, while RarusGalaxy focuses on education and support for people with rare diseases and disorders and their families and caregivers.

Our mission is to work collaboratively with rare diseases and disorders constituents to advance knowledge, illuminate and support extraordinary lives and navigate rare frontiers, together.

7000
300000000
People Affected Globally
Rare Diseases Identified

Our Story: Heart & Soul

"Our educational ecosystem embodies my unique perspective as a nurse, educator and mother who has navigated the complex journey of having two daughters, each with different rare disorders. I have ten years of nursing experience and over two decades of experience designing, developing and implementing healthcare provider continuing education and patient/family education.

Collectively, this experience infuses RarusMed/RarusGalaxy with a deep understanding and a personal commitment to addressing the multifaceted challenges, opportunities and triumphs of the rare community."

Isabelle Vacher, Founder/Nurse/Educator/Mother of Daughters with Rare Diseases

Women-Owned and Led

Leadership Team

We are a diverse team with deep expertise and fresh perspectives.
Rosa Shores
Business Operations, Technology & Innovation
4x founder with 20+ years in business operations & development, marketing/branding and novel concepts; 10+ yrs emerging technology, enterprise/data infrastructure, data analytics, and political affairs, specifically distributed/decentralized systems. Rosa's focus is integrating technology into business processes, particularly for transparency and accessibility of data.
Austin Shores
Digital Production and Gamified Learning
With prior work experience with Ubisoft and EpicGames, Austin leads the strategic development and implementation of digital content and gamified learning experiences for healthcare education.
Dana Tate
Director of Public Health Education
Leveraging her background in public health, health education, biomedical science, omni-channel marketing, content development, and rare diseases patient advocacy, Dana leads strategic efforts to empower patients through education, resources, and support networks within the RarusGalaxy platform.
Peter Zydek
Data Strategy and Analytics
As an expert in data and statistical analytics of large data sets, Peter drives initiatives aimed at maximizing the value of data across the organization, including predictive modeling and data outcomes analysis.
A Shared Goal

“Our goal is simple: to use RarusMed to help clinicians, patients and families navigate rare frontiers and illuminate extraordinary lives, together.”

RarusMed Team

2024
GUIDED BY EXCELLENCE

Our Advisory Team

A united and collaborative group of experts to propel our mission forward.
Kim Levy
Advisory Board Team Lead
Kim is an accomplished strategic marketing leader with a 20+ years  guiding organizations like Epocrates, Athenahealth, Doximity, and Medaxion through growth and change. Her extensive network spans non-profit, biopharma, healthcare technology, and organizational development, supporting her work with clinicians, patients, and caregivers across various therapeutic areas.
Elissa R. Guerra
‍Member of the Board of Advisors
Elissa is the Executive Vice President of PatientPoint, a renowned market leader in patient and physician engagement solutions at the Point of Care. With two decades of experience and unwavering dedication to the Life Sciences sector, Elissa leads a team of Client Solutions professionals and holds pivotal roles on various committees dedicated to advancing point-of-care practices. She is passionate about improving health outcomes by increasing health literacy to empower patients and their families and care teams.
Charles A. Dyer
‍Member of the Board of Advisors
Chuck is a seasoned technology leader and successful entrepreneur with a passion for helping startups succeed. With over 34 years of experience in the technology industry, he has held roles in infrastructure architecture, cloud engineering, blockchain, web3, and artificial intelligence. Chuck specializes in leveraging emerging technologies to solve today's business challenges. His expertise in artificial intelligence and blockchain have been instrumental in driving innovation and creating strategic advantages for numerous startups.
‍Bill Abernethy
‍Member of the Board of Advisors
Bill began in the pharmaceutical and biotech industry in 1981, with Eli Lilly. He has past sales and clinical research management experience and now, over 30 years of commercial experience. Bill joined Genzyme in 2000, the biotech pioneer in developing orphan disease treatments.  Bill has worked with several startups and smaller biotech companies since the Genzyme experience, expanding his market development and rare disease experiences.  He now has over 24 years of global commercial experience in rare genetic diseases and treatments, including 13 years with start up biotechs.
Our Unified vision and shared goals

Vision in Action

Together, we stand united in our quest to illuminate paths, inspire hope, and drive transformative change for those navigating the challenges of rare conditions."

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